Autism and Spoons

There’s a theory commonly used to explain life with chronic illness called “spoon theory.”

Imagine beginning each day with a limited number of spoons. Showering might take one. Working might take five. Making dinner takes another. When the spoons are gone, they’re gone.

For me, running out of spoons often means I crash.

A large part of managing chronic illness is learning to manage the energy you have. I’ve had to listen to my body, respect my limits, and stop forcing myself to function the way the world expects me to.

A few months ago, I started thinking about autism in a similar way.

For an autistic person, spoons might represent more than physical energy. They might represent the capacity to process sensory input, navigate transitions, regulate emotions, communicate, meet expectations, and mask.

Imagine an autistic child begins the day with ten spoons.

By the time they navigate the noise, expectations, sensory input, social interactions, and emotional regulation required at school, they may have already used eight of them.

That leaves only two spoons for home.

When home is where everything comes out

I spent many afternoons watching my child decompress after school.

Sometimes all I could do was wait for it to pass. I would leave a bag of Goldfish by his door, knowing he might be hungry even if he couldn’t manage coming out to eat.

Sometimes I would sit outside his door and cry.

It’s easy to look at a meltdown and believe the thing immediately preceding it was the cause. But that “small” thing may simply be the moment the final spoon was used.

Home is often where children feel safe enough to stop holding everything in.

My child wasn’t trying to give me a hard time. He had spent the entire day having a hard time.

Understanding that helped—but it didn’t tell me how to make things better.

Thinking outside the box

By that point, I had already removed the traditional 9-to-5 box from my own life.

Living with chronic illness had forced me to reconsider what work, productivity, and success should look like. I found that I thrived when I listened to my body and stopped forcing myself into a routine that continually depleted me.

Then I began wondering: How could I give my son some of that same freedom?

Traditional homeschooling didn’t feel like the answer for us. I knew my own spoons were limited. I worried that I would quickly become overwhelmed and rely on a tablet to fill the time I couldn’t manage.

So instead of trying to recreate school at home, we began combining our routines.

We started learning through travel.

Learning through the world around us

Daily travel gives us a reason to get out, explore, and learn together.

We’ve met farmers, campground owners, small-business owners, and other incredible people who have taken the time to answer his questions. These experiences allow him to learn through his interests, with more control over how he uses his spoons and less pressure to mask.

I can’t even explain how much we’ve learned about agriculture, geography, geology, history, and the world around us.

Even more surprising has been the change in his relationship with physical activity.

I used to have to convince him to get into the pool just to exercise. Beach days were generally a no because the sand overwhelmed him.

Now he hikes. He swims. He walks around campgrounds. He even enjoys the beach.

That doesn’t mean those things suddenly require no spoons. It means he has more choice. We can adjust the pace, leave when he becomes overwhelmed, follow his interests, and give him time to regulate.

Finding what works for our family

Travel isn’t a cure, and it isn’t the right answer for every autistic child or every family. It isn’t always easy for ours, either.

Every child has different needs. Every parent has different limitations. Every family has to find its own way forward.

But our family needed an outside-the-box approach.

We are still learning. We are still adjusting. There are still difficult days. But I’m watching my son become curious about the world, more willing to move his body, and increasingly confident about asking the questions that matter to him.

I hope—and pray—that we’re preparing him for life in the best way we know how.

I’m not a professional, and I’m not sharing this because I have all the answers.

I’m a mom trying to understand what my child needs—and discovering that thinking outside the box is changing our family.

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